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Grant Closed

A Longitudinal Investigation of the Friendship and Bullying Experiences of Middle School Youth with and without Autism Spectrum Disorder and Intellectual Disability

NCSER
Program: Research Training Programs in Special Education
Program topic(s): Early Career Development and Mentoring in Special Education
Award amount: $399,592
Principal investigator: Marisa Fisher
Awardee:
Michigan State University
Year: 2017
Award period: 5 years (08/16/2017 - 08/15/2022)
Project type:
Training
Award number: R324B170003

Purpose

The principal investigator (PI) conducted a program of research to better assess and understand bullying experiences of middle school students with autism spectrum disorder (ASD) and intellectual disability (ID) while participating in mentoring and training activities to develop expertise in ASD, school-based research, mixed-methods research, and grant writing. While students with disabilities experience significantly higher rates of bullying than students without disabilities, little is known about how they describe or report their specific experiences. Further, previous research has relied on the use of self-report bullying assessments that were not developed or adapted for individuals with ASD or ID, raising questions pertaining to the reliability of self-report findings. The PI aimed to address this research gap by exploring how parents and adolescents with ASD and ID experience and describe bullying and to use those findings to develop an accessible self-report bullying assessments for students with ASD and ID.  

Project Activities

Research plan

The key aims of the project were to: (1) explore and describe the bullying experiences of adolescents with ASD and ID and (2) develop an accessible self-report bullying assessment for adolescents with ASD and ID to report their bullying experiences. First, the PI examined existing self-report bullying assessments for their appropriateness for youth with ASD and ID and adapted two bullying assessments to pilot with adolescents with ASD or ID. Probing cognitive interviewing techniques were used to determine whether students understood the questions and what supports students needed to complete the assessments. Responses on the assessments were compared to parent reports of bullying, ultimately determining that existing adapted assessments were not appropriate in this population. Using a mixed methods approach, the PI then developed a bullying assessment for students with ASD and/or ID. The PI conducted interviews with parents (n = 12) and adolescents with ASD and/or ID (n = 18). The themes and codes from the interviews were then used to develop a new bullying assessment. The PI wrote brief vignettes of bullying scenarios using the language of the adolescents and parents and the examples of bullying that they provided. Delphi panel members reviewed the vignettes and provided feedback. After incorporating revisions based on panel feedback, cartoon videos were created to accompany each vignette. The measure was piloted with five adolescents with ASD and then revised again. The final version of the self-report bullying assessment consists of 16 cartoon video scenarios that depict short vignettes of four types of bullying experiences (physical, relational, verbal, and property damage). Lastly, the PI assessed the bullying experiences of 22 adolescents with ASD using the final measure. Data were analyzed to determine whether the self-report assessment was accessible for students with ASD and to determine the types of bullying experiences reported by adolescents with ASD.  

Career plan

Through a career development plan, the PI developed competencies in (1) assessing and conducting research with students with ASD; (2) conducting research in school settings; (3) planning, conducting, and analyzing results from mixed methods studies; and (4) developing competitive grant proposals. To do so, the PI engaged in meetings with mentors, coursework in statistics, workshops on mixed methods research, a training workshop on the ADOS-2, and grant-writing workshops. 

Key outcomes

The main findings of this project, as reported by the PI, are as follows: 

  • In interviews conducted early in the project, adolescents with ASD and/or ID reported more direct forms of bullying victimization, whereas parents were aware of and described both direct and indirect forms of bullying.
  • In these interviews, adolescents with ASD and/or ID also struggled to describe their bullying victimization experiences, often providing an inconsistent narrative with few details. Parents indicated that their adolescents do not always report or recognize experiences of bullying victimization.
  • Using the self-report bullying assessment developed in this project, adolescents with ASD were able to understand and complete the questions, and open-ended responses were consistent to responses provided on the rating scale.
  • Nearly 50% of the sample reported experiencing at least one type of bullying, according to responses on the self-report bullying assessment developed in this project. 

People and institutions involved

IES program contact(s)

Katherine Taylor

Education Research Analyst
NCSER

Project contributors

Connie Kasari

Mentor

Ryan Bowles

Mentor

Emily Bouck

Mentor

Products and publications

ERIC Citations: Find available citations in ERIC for this award here.

Additional project information

Additional Resources: 

Inside IES Research Blog: Autism Awareness & Acceptance Month  

Questions about this project?

To answer additional questions about this project or provide feedback, please contact the program officer.

 

Tags

Social/Emotional/Behavioral

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Questions about this project?

To answer additional questions about this project or provide feedback, please contact the program officer.

 

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