Inside IES Research

Notes from NCER & NCSER

Asking Questions about Dyslexia

National Disability Employment Awareness Month (NDEAM) recognizes the important role people with disabilities play in a diverse and inclusive American workforce. In recognition of NDEAM, we asked IES predoctoral fellow, Rachelle Johnson, how having a learning disability impacts her career development as a researcher. Rachelle, a PhD student and FIREFLIES fellow at Florida State University, researches the role various factors play in the reading development of students with learning disabilities, with a focus on socioemotional and environmental factors.

What inspired you to become an education researcher?

Being dyslexic, I grew up in special education and in pull-out reading intervention groups. Because dyslexic students were often in the same classes and pull-out groups, we formed an informal community of understanding and acceptance. But as I progressed through school, I noticed the makeup of my classmates changed.  My dyslexic classmates had spread out—a couple were in advanced placement, many were in regular classes, others still in mainly special education classes, and many in a mix of class types. And many of us came back together for inclusion English class. Among us we had vastly different goals for the future. I was in some advanced placement classes and was looking at going to university, while many of my dyslexic friends were just trying not to drop out of high school. In noticing these wide individual differences among my learning disabled (LD) peers, I wanted to know what differentiated us. Why had some of us gone onto high achievement and some didn’t when we all started out in that same reading intervention pull-out room?

To figure out these answers, I started to read what I could on dyslexia and began attending local conferences on learning disabilities. In doing so, I became frustrated because the people I saw talking about dyslexia were not LD themselves and often I was the only “out” LD person in the room. Even though I was still in high school, I decided I wanted to be the one to find the undiscovered answers to my questions about the factors involved in creating differentiated outcomes among learning disabled people. And I wanted to write about and tell people what I found and have that information help my LD community. What I was trying to find the word for was research, but I didn’t know that was a career option.

When I described my questions about learning disabilities to the PI whose lab I started working in as a research assistant my first semester in college, she encouraged me to pursue a career as a LD researcher. She showed me that answering questions was what researchers do and that being a researcher was a career option for me. Today, I continue to research the same overarching research question that I had in early high school: what factors play into the individual differences in academic outcomes among LD students?

What have been some challenges you have faced as a learning disabled person in academia?

A big challenge I often came up against in my early career was how “out” I was going to be about being disabled. I was told that if people knew I was disabled I would never get hired, no one would take me as a PhD student, and that I was just setting myself up for discrimination. However, part of why I started pursuing research was because I didn’t see LD people being represented and given a voice in conversations on LD. I decided to go against the advice of those around me and disclose my disability. I knew I would not be able to hide my disabilities well and that if I was going to thrive in an environment I would need to disclose. Also, my disabilities are central to my identity, and I didn’t want to hide that important part of myself. It is important to me to be the representation I desperately wanted. 

Another challenge is that there is pressure to “be disabled but not too disabled.” When people first meet me, they often talk about my dyslexia in the past tense, like it is something that I overcame in elementary school. However, I did not overcome my dyslexia. Dyslexia is a lifelong disability and one that is very much still a part of my daily life. Reading is still an issue for me and will always be. I rely heavily on assistive technology such as text-to-speech to read academic articles.

What supports have been the most helpful to you in your academic career?

I have had many great mentors, both current mentors at Florida State University and past mentors in and out of research. My mentors never expected anything less from me due to my disability and were also willing to talk with me through different barriers and find solutions together without lowering the expectations.

As a person with a learning disability, what advice would you give education researchers who focus on students with learning disabilities?

Be sure to actively involve LD people in your research. A small proportion of people researching LD are LD themselves. Help by mentoring the next generation of LD researchers by taking on LD mentees.

What advice would you give students with learning disabilities who wish to pursue a career in education research?

Sometimes, it can be scary thinking about going into a field such as education research, especially if you are not expected to do well.  I have actively sought a career that relies on skills that I have disabilities in. However, even if the field of education research was not structured with disabled people in mind from the beginning, that does not mean that the LD and otherwise disabled community do not belong there. Imposter syndrome happens, but you do belong in those spaces.

Community is so important inside and outside academia and inside and outside disability. I have had many mentors who have supported me. My learning-disabled community outside of academia has always been there for me and that is a cherished part of my support system. Whether that be just friends or someone to help problem solve when my assistive technology is malfunctioning. But it is also important to be involved in disability community as a whole, not just limited to LD. And the level of disclosure and outness of disability is a personal choice for everyone. But I have found that in being out as disabled at least I am not also hiding a big part of my identity and it helps in finding other disability community members to make connections.


This year, Inside IES Research is publishing a series of interviews (see herehere, and here) showcasing a diverse group of IES-funded education researchers and fellows that are making significant contributions to education research, policy, and practice. 

Rachelle Johnson is a proud dyslexic with ADHD. She has been in learning disabled spaces all her life and is actively involved in learning disability research, outreach, and activism. Rachelle is currently a developmental psychology Ph.D. student and FIREFLIES fellow at Florida State University, where she researches reading development and learning disabilities within the Florida Center for Reading Research. She is also a member of the Board of Directors and the Young Adult Leadership Council of the National Center for Learning Disabilities. The goal of both her research and activism is to create a world where learning disabled people are understood, supported, and reach their potential in life.

This blog post was produced by Katina Stapleton (Katina.Stapleton@ed.gov), NCER program officer and co-chair of the IES Diversity Council.

Helping People with Disabilities Achieve their Employment Goals

National Disability Employment Awareness Month (NDEAM) is held every October to raise awareness about disability employment issues and celebrate the contributions of workers with disabilities. This year, we asked Dr. David Mann, a senior researcher at Mathematica and alumni of our University of Pennsylvania predoctoral training program, to share his journey as a researcher with a physical disability as well as his current research on vocational rehabilitation.

As a person with a physical disability, how have your background and experiences shaped your scholarship and career?

Having a disability has profoundly shaped my scholarship and career. My research focuses on the employment, benefit receipt, and health of children and working age adults with disabilities. My interest in those topics is rooted in my own experience as a person with a disability. Before my injury and subsequent disability, I had limited interest in disability awareness or policy. But after joining the disability community, I came to appreciate the importance of generating evidence that can empower people with disabilities to live the lives they want. More personally, I view my disability and the insight it provides as a critical component of who I am.

What sparked your interest in education research?

My interest in education research is rooted in my personal experience. I acquired my disability at age 14, just after finishing the eighth grade. I was taught at a young age that education is critical to having a fulfilling career, but that insight became even more important after acquiring a disability. I knew that if I wanted to be independent as an adult, education would be critical. This personal experience made me interested in education research more broadly, especially the intersection of education and disability.     

How does your research on vocational rehabilitation contribute to a better understanding of how to support students with disabilities as they enter the workforce?

The Vocational Rehabilitation (VR) program provides services and supports—including education-based supports—to people with disabilities who want to work. The services and supports are individually tailored based on each customer’s career goals and barriers to employment. I received VR services during my time in college and graduate school. My recent VR research focuses on testing new interventions that could improve employment outcomes for key groups of VR customers, such as transition age youth or people receiving subminimum wages. If we can generate evidence that identifies more effective strategies for helping people with disabilities achieve their employment goals, then we can have a large positive impact in the disability community.

What has been the biggest challenge you have encountered as a researcher with a disability and how did you overcome the challenge?

My biggest disability-related challenge as a researcher is managing the effects of my condition, which are wide-ranging. My limited stamina, inability to physically write, and limited ability to type are key challenges when trying to produce research and keep up with colleagues. I use assistive technology and other accommodations whenever possible to overcome these challenges. However, not all the effects of my condition are addressed with technology or accommodations. Consequently, I also do the best I can to take care of myself and avoid situations that demand more stamina than I have.   

How can the broader education research community better support the careers and scholarship of researchers with disabilities?

If I had to highlight one thing the broader education research community can do to support researchers with disabilities, it would be creating a culture of encouragement. Reflecting on my experience in the predoctoral training program, a few key faculty members linked to the program regularly signaled to me that I could do what I set out to achieve. Put another way, they believed in me. I will always be grateful for that because it gave me the confidence to pursue the career I really wanted, not what I thought was expected of me. Any graduate student can benefit from encouragement but encouraging researchers with disabilities is especially important because of the additional challenges they must overcome.

What advice would you give to emerging scholars with disabilities who are pursuing a career in education research?

Pursue your research passion! I was interested in disability-related research since college, but early in my graduate career an advisor in the economics department dissuaded me from pursuing disability-related research because I have a disability. I now realize how misguided that advice was, but at the time, I followed his advice. It was only after graduate school that I felt free to examine the intersection of disability, education, and employment. Do not make the same mistake—start pursuing now the research topics you care most about.


This year, Inside IES Research is publishing a series of interviews (see herehere, and here) showcasing a diverse group of IES-funded education researchers and fellows that are making significant contributions to education research, policy, and practice. 

David Mann is a senior researcher for Mathematica’s Center for Studying Disability Policy. His primary research interests include the labor force participation, human capital accumulation, and benefit receipt of youth and adults with disabilities. He also has expertise in disability policy reform.

This blog post was produced by Katina Stapleton (Katina.Stapleton@ed.gov), NCER program officer and co-chair of the IES Diversity Council.